Lost and Tired

Dysautonomia: Summing things up 05/17/2012

Lost and Tired — Thu, 17 May 2012 20:06:16 +0000

We made it home safely. The return trip was much easier then the trip up there. We met with the doctor for about an hour and had a very interesting conversation. He took an extensive background medical history. After the history, he did a through physical exam. Believe it of not, the doctor [...]

Dysautonomia 05/17/2012: The vitals

Lost and Tired — Thu, 17 May 2012 13:49:43 +0000

They just took Gavin’s vitals. He is experiencing orthostatic bp issues. That means that his bp drops when sits or stands. At least we are in the right place. **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for “Autism Help” app at the Google Play [...]

Dysautonomia: Arrival at the Cleveland Clinic 05/17/2012

Lost and Tired — Thu, 17 May 2012 12:56:26 +0000

We have arrived at the Cleveland Clinic, exactly on time. Traffic was horrible and Gavin is already out of it. We are all checked in and waiting to go back. **Thanks for reading** -Lost and Tired Please join our Autism Help Forum Look for “Autism Help” app at the Google Play [...]

Dysautonomia: Our quest begins with the first step

Lost and Tired — Thu, 17 May 2012 10:35:27 +0000

We are on our way to hopefully find answers. It’s about an hour and twenty minute drive, not including traffic. I have a feeling that this is going to be a really long day. I want to thank our parents for taking Elliott and Emmett last night. This allowed Elliott to get to school and Emmett to [...]

Dysautonomia: 8 years in the making

Lost and Tired — Thu, 17 May 2012 02:04:22 +0000

Tomorrow is a big day for the Lost and Tired family. We will make our trip to the Cleveland Clinic in search of answers to Gavin’s continuous decline in health. For those of you new to this blog and our story, I give you some brief back story. Gavin is an extremely rare child. Not only is he an [...]

Dysautonomia, Epilepsy and Today’s Followup: 05/16/2012

Lost and Tired — Wed, 16 May 2012 18:47:38 +0000

So we made it home today from Gavin’s appointment. It actually went really well. Nothing has changed but I think that we’re even more sure that he is definitely dealing with with some form of Dysautonomia. We had to take Emmett with us as well. He did really well while we were there because he [...]

Dysautonomia: Following up from the hospital stay

Lost and Tired — Wed, 16 May 2012 05:23:00 +0000

Gavin in will be returning to see the neurologist in the morning. This is an epilepsy and Dysautonomia follow up. While he hasn’t been officially diagnosed with Dysautonomia, we expect that to be soon. When he was admitted 2 weeks ago, that’s what they treated him for. Tomorrow is a follow up [...]

Screw you Apple (UPDATED)

Lost and Tired — Wed, 16 May 2012 01:57:07 +0000

I’m so pissed off right now. I have dozens of reasons for disliking Apple and all they stand for but this latest issue has affected me directly. We switched back to Sprint in order to save money over Verizon. We were able to trade our phones in and get phones at Sprint for free. I am, or was, going [...]

My accomplishments of the day: 05/15/2012

Lost and Tired — Wed, 16 May 2012 01:17:13 +0000

While today started out really crappy, it ended up pretty well. I actually got quite a bit accomplished. I took Elliott to school, got caught up on some emails, wrote two articles, made a few important phone calls, hit the post office, cleaned the fish tank, picked up Elliott from school, [...]

Today’s Victory: 05/15/2012

Lost and Tired — Tue, 15 May 2012 14:46:34 +0000

The boys were all driving me crazy and I mean banging my head into a wall crazy. In a last ditch effort to broker a peace deal, I took them outside, which is something we don’t always like to do in our neighborhood. We got the tee ball set out of the garage and set it up. Elliott and Emmett took [...]