Parent of a Child with Albinism

Lyra’s New IEP

admin — Sat, 04 Sep 2010 20:25:34 +0000

We finally completed Lyra’s IEP for the 2010-2011 school year. Probably the biggest difference between this year’s IEP and last year’s is in the number of goals. Last year we had only 2 goals and this year there are 5. Communication and teamwork among Lyra’s IEP team members, including myself has improved significantly compared to [...]

Lyra’s Art

admin — Sat, 07 Aug 2010 04:41:17 +0000

Preschool Classes

admin — Wed, 28 Jul 2010 04:43:50 +0000

Successful 1st Year of Preschool

admin — Tue, 27 Jul 2010 18:41:01 +0000

This is the first of several posts that are LONG overdue! There is so much I have to talk about that I hardly know where to begin. Plans for next year are looking really good, but before I start talking about her new IEP, let me just summarize this past year… Lyra had a very [...]

Don’t Call My Child Albino!

admin — Fri, 23 Apr 2010 09:31:25 +0000

With everything I am about to say, it is my intention to represent only the opinions of me and my family. While I do refer to other parents, my statements do not reflect the views of all parents of children with albinism or individuals with albinism. People who know me and my family through NOAH [...]

Beyond Blonde

admin — Sat, 17 Apr 2010 22:14:44 +0000

My article, Sight Unseen was recently published by the Albinism Fellowship of Australia (AFA) in their quarterly newsletter called Beyond Blonde! This is the second publication of my article. A big Thank You to AFA for allowing me to share this on my blog! Click on the picture above to view the first 12 pages [...]

Creativity

admin — Wed, 07 Apr 2010 13:47:20 +0000

Lyra “wrote” and drew the pictures for her story. She is very descriptive with her storytelling. Photo and video editing at www.OneTrueMedia.com ©2010 Parent of a Child with Albinism. All Rights Reserved..

3rd Quarter Preschool Progress

admin — Thu, 01 Apr 2010 04:34:28 +0000

The information below is from Lyra’s 3rd quarter progress reports from the private preschool she attends. The first section is from her braille instructor and the other is from her regular classroom teacher. I am quite pleased with their reports. :D Lyra uses a braillewriter adapted with unifix cubes on the keys. She inserts paper [...]

Nearing Spring

admin — Tue, 23 Mar 2010 19:04:47 +0000

1st Semester Progress

admin — Fri, 26 Feb 2010 02:28:58 +0000

Lyra is doing great in preschool. One thing that I haven’t yet mentioned…at least I don’t think I’ve mentioned, is that Lyra actually attends two different preschools. One is the school district preschool. This is the one that handles her IEP. She attends this one on Tuesdays and Thursday mornings and she receives direct braille/vision [...]