http://www.scdam.org SCDAM: Sickle Cell Advocacy: Let's Do this Wed, 06 Oct 2010 18:11:44 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 scdam-sitehttp://feedburner.google.com http://feedproxy.google.com/~r/scdam-site/~3/y8recd5cxj4/sickle-cell-challenges http://www.scdam.org/sickle-cell-challenges#comments Tue, 03 Aug 2010 06:11:29 +0000 Ijeoma Okechukwu http://www.scdam.org/?p=616 Although research and sickle cell treatments have progressed in the last several decades, there are still many unfortunate challenges sickle cell patients face today. (See article on sickle cell challenges) ~Ijeoma Okechukwu~<img src="http://feeds.feedburner.com/~r/scdam-site/~4/y8recd5cxj4" height="1" width="1"/> http://www.scdam.org/sickle-cell-challenges/feed 5 http://www.scdam.org/sickle-cell-challenges http://feedproxy.google.com/~r/scdam-site/~3/XzJk2A2io-A/sickle-cell-struggles-in-nigeria http://www.scdam.org/sickle-cell-struggles-in-nigeria#comments Sun, 01 Aug 2010 12:07:49 +0000 Ijeoma Okechukwu http://www.scdam.org/?p=603 The unfortunate battle amongst sickle cell patients, drug companies and the government is continously unfolding in countries like Nigeria. There is an urgent demand for the unavailable sickle cell drug, Nicosan (See article on Nicosan battle). ~Ijeoma Okechukwu~<img src="http://feeds.feedburner.com/~r/scdam-site/~4/XzJk2A2io-A" height="1" width="1"/> http://www.scdam.org/sickle-cell-struggles-in-nigeria/feed 2 http://www.scdam.org/sickle-cell-struggles-in-nigeria http://feedproxy.google.com/~r/scdam-site/~3/LCQlAihDZpQ/sickle-cell-legislation http://www.scdam.org/sickle-cell-legislation#comments Mon, 28 Jun 2010 10:48:56 +0000 Ijeoma Okechukwu http://www.scdam.org/?p=594 Sickle Cell Disease is a prevalent disorder in the United States; approximately 72,000 individuals in American are affected by this illness. Unfortunately, there are many issues surrounding this disease. Issues inclusive of discrimination, health insurance coverage and sickle cell research. Visit The National Conference of State Legislatures website to learn more about the statutes and [...]<img src="http://feeds.feedburner.com/~r/scdam-site/~4/LCQlAihDZpQ" height="1" width="1"/> http://www.scdam.org/sickle-cell-legislation/feed 0 http://www.scdam.org/sickle-cell-legislation http://feedproxy.google.com/~r/scdam-site/~3/QcmLcwe6O7s/low-incidence-disease-specialist-for-department-of-education http://www.scdam.org/low-incidence-disease-specialist-for-department-of-education#comments Fri, 30 Apr 2010 19:37:57 +0000 Executive Board http://www.scdam.org/?p=486 At last!! the Minnesota State Dept of Education finally hired a Low Incidence Specialist, who is the director of all the programs that affect our kids with chronic health problems.  She was just hired in late January.  Sickle Cell Disease is apparently is at the top of her list!  She is setting up a small [...]<img src="http://feeds.feedburner.com/~r/scdam-site/~4/QcmLcwe6O7s" height="1" width="1"/> http://www.scdam.org/low-incidence-disease-specialist-for-department-of-education/feed 1 http://www.scdam.org/low-incidence-disease-specialist-for-department-of-education