Talking "Special" Needs

I Know Different

noreply@blogger.com (Lori Osero) — Sun, 09 Oct 2011 15:16:00 +0000

This is beautiful! It was written by Tricia Proefrock & I wanted to share...

Dear mommy,

I have felt your tears, falling on my face.
Someone else might think they are tears of sadness, because of what I can't do.

I KNOW DIFFERENT.

I know those tears pour from your heart out of gratitude for me, because of what I CAN do : I can love everyone in the purest form possible. Unconditionally. I can be judged, but will never judge in return.
I know different because I feel, in your hugs and kisses, that I'm perfect just the way I am.

I have seen you hang your head down in shame, when we go out on adventures.
Someone else might think you are ashamed of having a child like me.

I KNOW DIFFERENT.

I know you are ashamed of the grown-ups who ignore me, yet talk happily to all the other children. The grown-ups who won't look you in the eye, but stare at me, when they think you don't see. I know different because I've seen the many, many more times you have raised your head up high, with pride, because I'm yours. : )

I have heard you whispering desperate prayers at night. Someone else might think you are asking God to make me a typical kid.

I KNOW DIFFERENT.

I know you are thanking Him that I got to be here, with you, for another day- exactly how I am. I know different because I have heard you ask me never to leave you. And I have heard you cheer for me, every single day of my life- you tell me I don't need to be typical to be amazing, I just need to be here.

I know you have a big job, taking care of me.
I know your body hurts, because I'm getting so big.
I know that more than anything, you want to hear me say your name.
And I know you worry that you aren't good enough, and that you will fail me.

BUT I KNOW DIFFERENT MOMMY.....
I know that even on your worst days, you will always be enough for me, and I will always love you more than you know.

The First Picture of my sweet Lil Man, Danny ~ from THAT moment I touched his hand for the first time I KNEW we were going to Different, and that we'd have a bond unlike no other. To my HERO ~ Mommy Loves that you "Know Different"Thank You Tricia Proefrock for writing this ~ It's AMAZING!

*************************************************************************************
This Blog was created as a Social Network Site for Families, Caregivers, and Medical Personnel to come together to share ideas, advise, and experiences in this world we call LIFE.

This site is for informational purposes ONLY. Not to be used for medical diagnosis' or treatments... please consult your physician for medical advise given as "WE" will not to be held responsible for actions taken.

I invite you to send me:

1. Your blog address so I can add it to the forever growing Blog list ~ this will be a "quick" link to your blog for people to follow you on an on going basis

* don't forget* 2. Please send me a short synopsis about your story. I would like to know who you are, where you are, how many children with ages. I would also like diagnosis' and medical treatment/surgeries as I will be putting a WELCOME post of each family on the blog so when others come to visit they can search our blog to find specific topics that they are looking for.

3. If you have an inspirational or educational story and/or website that you'd like to share, please forward that as well and I will link it on the blog for other to find and follow

Please send me your information via email .... to talkingsn@yahoo.com with WELCOME info as your subject.

I am going to start a "Classified" section were I can post items that families would like to get rid of. I'm not sure how I'm going to get it going as of yet but ideas and opinions are WELCOME. Please contact me if you are in looking to sell or give away items ..... or if you are in NEED of finding items. I can post them on the board for everyone to see. It's a work in progress and if done right I hope that this blog will be a BIG resource. Please email me with your information, description, picture, and price to talkingsn@yahoo.com with Classified for a subject.
Depending on where your items go we can discuss with the buyers what's the best way of shipping/receiving the item.
If you are a business looking to get noticed by a LARGE amount of Special Needs families please contact me and we can talk about me advertising your link on the blog of ALL to see. Send me your information to talkingsn@yahoo.com with Business as a subject.

Thanks for your time and interest in helping others that are walking in our shoes.

Eye Candi

noreply@blogger.com (Lori Osero) — Mon, 21 Feb 2011 15:52:00 +0000

Looking for a great product to use for a fundraiser? Or just looking to get one (or a couple) for yourself? Check this out!

One of my girlfriends is making these wonderful pieces of jewelry that can be custom made with a picture, symbol, the sky is the limit. Click HERE and that will get you to her link and you can see what she can do. It's amazing!

Birth Injury Forum

noreply@blogger.com (Lori Osero) — Wed, 10 Nov 2010 15:12:00 +0000

The Birth Injury Forum was created to provide a mechanism for concerned families to share information regarding their life's experiences in caring for children with birth-related neurologic injuries. This website is a public resource which contains general information and is not intended to constitute specific legal or medical advice. The content of this site is for informational purposes only. Dugan, Babij and Tolley, LLC does not offer specific legal advice over the internet. Edward Hill, III, M.D. does not offer medical advice over the internet. While Dr. Hill and Dugan, Babij and Tolley, LLC welcome your email inquiries, sending an email to Dr. Hill or to Dugan, Babij and Tolley, LLC does not create a physician-patient or an attorney-client relationship.

Please meet Dr. Edward Hill ~ not only a great doctor and lawyer, but human being. I've not had the pleasure of meeting him in person (yet) but have had conversations with him via phone and email. What an inspiration and advocate to families of children with "Special Needs". He's educated, supported, and cared for my family whole heartedly where most would just turn the other cheek. Because of Dr Hill I have a "reason" or shall I say "title" of what happened to my son and for that I will be forever grateful to Dr. Hill.

Dr. Edward Hill, III is a clinical forensic medicine physician with concentration in perinatal neuromedicine.

Holding both a medical degree (M.D.) and a law degree (J.D.), Dr. Hill began his career focusing on analyzing health care systems to determine methods of enhancing health system quality while improving patient health outcomes and patient safety. During this phase of Dr. Hill's career, he developed innovative approaches toward measuring clinical processes and physician performance and co-developed a software program to assist hospitals and their liability insurance carriers with determining liability risk based on physician management of specific diagnoses and conditions. He also developed a physician external peer review organization that obtained a contract with the Department of Defense's Bureau of Medicine and Surgery to manage the Department of Navy's involvement in a U.S. Congress mandated physician performance study entitled the "Civilian External Peer Review Project" that measured and compared military physician performance with civilian physician performance over 10,000 physician-patient encounters. Dr. Hill's organization was also responsible for monitoring and tracking the regulatory and accreditation process for the Department of Navy's 137 hospitals throughout the world. Dr. Hill also held a seat on the National Practitioner Database Panel that provided guidance to the initial development of the database and the Department of Defense's participation with the database. Dr. Hill's activity with the Department of Defense resulted in consulting and lecturing opportunities throughout the nation on topics related to physician performance, clinical surveillance, medical quality, patient safety and hospital liability risk exposure.

Dr. Hill's national exposure resulted in a request from the National Academy of Science's Institute of Medicine for him to serve as a Senior Program Officer and the Study Director to a national study entitled "Environmental Justice: Research, Education and Health Policy Needs." The study was commenced pursuant to President William Jefferson Clinton's Executive Order to study the adverse impact of environmental pollutants and toxicants on minority and socio-economically disadvantaged communities and to report findings and policy recommendations to the U.S. Congress. Results of the study were published by the National Academy Press in 1999 in the form of a book entitled: Environmental Justice: Research, Education and Health Policy Needs.

Influenced by his activities with the Department of Defense and the Institute of Medicine study, Dr. Hill formed an organization focused on determining the clinical processes and medical mechanisms of potentially preventable clinical adverse health outcomes. Dr. Hill believed that if one would focus on adverse outcomes that were potentially preventable and retrospectively study the past events from both a clinical process perspective and a medical mechanism perspective, trends would result that could be used for the development of clinical surveillance approaches toward earlier detection, intervention and potential prevention. Later determining that the greatest societal impact of potentially preventable adverse health outcomes were borne by those who experienced neurological adversities early in life, Dr. Hill concentrated his efforts toward potentially preventable neurological adverse outcomes experienced during the perinatal and neonatal periods of life.

Since 2000, Forensic Perinatal Group (now Forensic Perinatal) has performed hundreds of individual case studies for parents of children living with neurological disability. Data trends have been used to establish clinical risk markers that serve as the foundation for researching and developing clinical surveillance technology innovations for the purpose of earlier detection, intervention and potential prevention.

Forensic Perinatal and Dr. Hill have partnered with biomedical information technology and medical device companies along with academic universities in common pursuit of advancing clinical surveillance technology research and development.

Send a private question to our Medical Editor: drhill@birthinjuryforum.com

http://www.forensicperinatal.com

Click HERE to Read and Join the Birth Injury Forum

Welcome The Nelson Family

noreply@blogger.com (Lori Osero) — Sun, 31 Oct 2010 13:53:00 +0000

The Nelson Family live in Pasedena CA and here is their daughter Moriah's story.

Moriah was in the hospital for the past 11 1/2 months between LPCH and CHLA. During this time, she had two open-heart surgeries (one of them being a 12.5 hour full repair of her heart - yes!), a diaphragmatic plication, survived severe septic shock, and recently received a tracheostomy. She battled fevers and infections, most of unknown origin for 8 months, and they finally diagnosed her as having an undefined immune deficiency. After an acute bleeding incident from her trach, Moriah was life-flighted back to LPCH from CHLA, and our family finally made the decision to move to Northern California. Moriah is finally out of the hospital and is beginning her rehabilitation at the Children's Recovery Center. We ask that you continue to keep our sweet girl in your prayers as we continue on this journey. Thank you for all the love and support. Love, Justin and Victoria

Updated status is that Moriah has finally been able to go home. It's been alil rocky for her first few days. Please send a prayer their way!

To see Moriah's full story and her journey's go to "Moments with Moriah"

Inviting YOU ~ New Contact info

noreply@blogger.com (Lori Osero) — Thu, 28 Oct 2010 15:22:00 +0000

I was have alot of difficulty with my gmail account as it wasn't working properly all the time so I have a new email. Please send your stories to talkingsn@yahoo.com. If I haven't put yours up yet and you've sent it to my old account I apologize and request that you send it to my new email. I will get it up ASAP. Thanks for all your participation in helping get this resource up and running.

Again my new contact email is talkingsn@yahoo.com
*************************************************************************************
This Blog was created as a Social Network Site for Families, Caregivers, and Medical Personnel to come together to share ideas, advise, and experiences in this world we call LIFE.

This site is for informational purposes ONLY. Not to be used for medical diagnosis' or treatments... please consult your physician for medical advise given as "WE" will not to be held responsible for actions taken.

I invite you to send me:

1. Your blog address so I can add it to the forever growing Blog list ~ this will be a "quick" link to your blog for people to follow you on an on going basis

* don't forget* 2. Please send me a short synopsis about your story. I would like to know who you are, where you are, how many children with ages. I would also like diagnosis' and medical treatment/surgeries as I will be putting a WELCOME post of each family on the blog so when others come to visit they can search our blog to find specific topics that they are looking for.

3. If you have an inspirational or educational story and/or website that you'd like to share, please forward that as well and I will link it on the blog for other to find and follow

Please send me your information via email .... to talkingsn@yahoo.com with WELCOME info as your subject.

I am going to start a "Classified" section were I can post items that families would like to get rid of. I'm not sure how I'm going to get it going as of yet but ideas and opinions are WELCOME. Please contact me if you are in looking to sell or give away items ..... or if you are in NEED of finding items. I can post them on the board for everyone to see. It's a work in progress and if done right I hope that this blog will be a BIG resource. Please email me with your information, description, picture, and price to talkingsn@yahoo.com with Classified for a subject.
Depending on where your items go we can discuss with the buyers what's the best way of shipping/receiving the item.
If you are a business looking to get noticed by a LARGE amount of Special Needs families please contact me and we can talk about me advertising your link on the blog of ALL to see. Send me your information to talkingsn@yahoo.com with Business as a subject.

Thanks for your time and interest in helping others that are walking in our shoes.

Welcome the Hammond Family

noreply@blogger.com (Lori Osero) — Mon, 25 Oct 2010 18:50:00 +0000

The Hammond family lives in Wilmington, DE. Melissa and Matthew have 2 children and here's their Daughter Madison's story.

Madison was born 5/10/05 after I suffered a ruptured splenic artery aneurysm during pregnancy. She had severe oxygen deprivation prior to her birth resulting in hypoxic ischemic encephalopathy (HIE). Madison was also a 33 week preemie and was born without a heartbeat and spent a few days on a ventilator. We were given the option of taking her off the ventilator and letting things go "naturally", but we knew she was a fighter ... and that she has proved!

At 4 years, she is diagnosed with Quadraplegic Cerebral Palsy, Infantile Spasms, GERD, Severe DDH (Development Dysplasia of the Hip), Severe osteoporosis, Scoliosis of the spine, and has a G-J tube (feeding tube). She takes nothing orally. To date, Madison has had four broken femurs.
To follow Madison's full story and journey's go to Madison's Blog
Madison can smile and coo and definitely knows her surroundings. She'll also get a nice giggle out when daddy jiggles her arms or yawns nice and loud. She's a huge fan of Dr. Phil these days too ... loves the music and LOVES when Dr. Phil "enters the stage". I think she's got a crush on him ... shhhhhhhh.

Welcome the McManic Family

noreply@blogger.com (Lori Osero) — Mon, 25 Oct 2010 18:10:00 +0000

The McManic family lives in Trussville, AL. Amy and Chad have 4 children and this is there Daughter Sophie's Story.

I went in to the hospital that Saturday morning because I had not been feeling Sophie moving around like she had been. I had been there about an hour and a half when there were some complications with her heartbeat. The doctor that was on call was Dr. Radbill, one of the very few doctors at Brookwood who prays with his patients; he was already there. There was a c-section scheduled that morning for around this same time, so the operating room was already set up and ready to go along with all the assistants the doctor needed. The neonatologist {fancy word for Sophie's doctor} was already there, which is not necessarily the norm on a Saturday morning. You see God had already been preparing and providing for this situation and for us before we even knew we needed help. He truly does go before us as Deut. 31: 8 tells us and Thank You Lord for that. He knows what we need before we even ask it of Him. Sophie Kate was born at 9:08am that Saturday morning, November 3. We were told that she was not breathing when she was born and had no heartbeat, she had lost her entire blood volume, as her doctor would tell us later she had a massive bleed. Sophie was resuscitated for 15 minutes and was given 4 blood transfusions. We were painted a "grim" {and that is a quote from the doctors} picture during the first 24-48 hours of her life. She was placed on a ventilator, she was heavily sedated and Chad and I were briefly allowed to touch her precious little hand. Little did we know at that time that we would not be allowed to even touch our baby girl for days after that. God continued to work in little Sophie's life and within 3 days she had been taken off the ventilator and the day after that was taken off all her breathing support and was just getting a little bit of oxygen through her nose. So her lungs were getting stronger, her kidneys were doing their job, and her heart was completely normal all of these things were miracles considering where she had been just 4 days prior. The only question left to answer was the damage done to her brain from the oxygen depletion, and that was when our world stopped and froze in time. From a CAT scan and an EEG we received news that no parent ever thinks they will hear or could even bear to hear about their precious child, brain damage, extensive brain damage. It was just devastating. Unthinkable, unbelievable this was not happening, this could not be happening to our baby girl after all the miracles we had seen from God so far, but we knew that God had a plan for our family and for our little Sophie.

To see Sophie's full story and journey please go to In the Blink of An Eye

Welcome the Booze Family

noreply@blogger.com (Lori Osero) — Mon, 25 Oct 2010 14:08:00 +0000

They live in Virgina Beach, VA. They have 3 beautiful girls and here is their Daughter Suzy's story.

Suzy was admitted to the Children's Hospital on January 27th and diagnosed with viral encephalitis, which is inflammation and swelling of the brain. She was in a coma and spent two very scary weeks in the ICU. Suzy stablilized somewhat and moved into the hospital's rehab unit for 8 weeks. Suzy's most recent MRI indicates that she has suffered atrophy in her brain as a result of the seizures and inflammation, and has permanent brain damage.

At the present time she is unable to hold her head up, move her extremities, grasp an object, sit up, or even pay attention to a stimilus for more than a few seconds. Her doctor's have predicted that she will never be able to crawl, walk, communicate, talk, play, or even feed herself. And there is nothing else they can do to help her.

However, children with brain damage frequently prove their doctors wrong. She could remain the way she is, or she could make some good recovery. Only time will tell. The brain takes a long time to heal and to re-learn the lost functions. Hopefully, because she is so young, other areas of her brain will take over for the damaged areas. We have chosen to believe that God WILL work a miracle with Suzy.

Chris and I ,together with our two daughters Gracie and Maggie, are thankful for the support and prayers of so many during the hardest days of our lives. Without your love this challenge would not be possible. We are staying positive. We are filling up her life with HOPE, PRAYERS, and LOTS OF LOVE!!!

PEACE ,

Chris and Whitney

To follow Suzy's full story and journey's go Suzy's Blog

Welcome The Sherwood Family

noreply@blogger.com (Lori Osero) — Wed, 20 Oct 2010 14:53:00 +0000

Prayers NEEDED ~

The Sherwood family lives in my home town Neenah, WI.

In the beginning of September, 2010, Hannah began to not feel well. She had stomach pains and headaches. There were numerous doctor visits and she just wasn't getting better. Later September, she took a turn for the worse and an MRI showed that there was a brain tumor. We immediately went to Madison and within hours had surgery. The surgery was successful & the entire tumor was removed. The pathology report determined that it was medulloblastoma.Our journey for Hannah's recovery has begun!

Hannah just had her shunt placed yesterday and was on a plane last night to go to Boston for a very aggressive treatment of radiation and Chemotherapy. Please stop by and send them words of encourgement or just the power of prayer.

To follow her story go to her Caring Bridge Site Hannah Sherwood

Welcome the Fischer Family

noreply@blogger.com (Lori Osero) — Mon, 18 Oct 2010 18:08:00 +0000

We are the Fischer Family. We are Jenny and Matt, and we have a 4 year old son, Max, and almost 3 year old identical twin girls, Penny and Cici. When the twins were 11 months old, Cici choked on a piece of diced canned fruit, and went into respiratory and cardiac arrest, despite immediate first-aid and CPR. She was resuscitated, but spent 6 weeks in the hospital recovering. She has a severe brain injury due to the time she was without oxygen during her choking accident. She now is legally blind (CVI), with seizures, fed by g-tube (with Nissen), global developmental delays, non-ambulatory, chronic lung disease, and is now in a hip spica cast for six weeks following a surgery for hip dislocation. She is also just as cute as her sister and adored by her brother, and her smile silences a room and attracts attention. We are so lucky to have her with us.

To follow their full story and journey's go to their Blog The Fisch Tank

Welcome Walking and Wheeling LLC

noreply@blogger.com (Lori Osero) — Thu, 14 Oct 2010 15:55:00 +0000

Welcome Walking and Wheeling. Many have asked where Danny gets some of his equipment. Well here he is...... Danny's Private PT Peter! He does a wonderful job with Danny, I can't express how appreciative we are that Peter is back in Danny's Life. Ironically Peter was the PT that took care of Danny in the NICU when Danny was born.

Walking And Wheeling is a company that provides mobility and positioning equipment to individuals in Northeastern Wisconsin with a variety of different abilities. This assistive technology equipment is in the form of orthotics, specialized wheelchairs, walkers, bikes-trikes, bath equipment and many other forms of positioning and mobility equipment. The company is owned and operated by Peter Jacques, physical therapist with over 20 years of experience working with special needs children and adults.
One of the most important ways we can help our children enjoy happy healthy lives is to afford them the opportunity to move at the earliest possible age.
At Walking and Wheeling, we provide the most optimum adaptive equipment to get your child walking and/or wheeling.
Services we provide:
We can evaluate your child’s orthotic and mobility equipment needs at your home, school, or wherever your child functions. We will do a:
-A physical therapy evaluation with the child’s parents, primary therapists,
childcare provider, and /or school staff. We will collaborate together to
make the best recommendation for orthotics and mobility equipment.
-On site casting, and fitting of orthotics, and braces.
-On site measuring, and fitting for wheeled mobility, and ambulation aides.
-Training in the use of the adaptive equipment.
-Consultation for treatment options for the child with his/her primary therapist.
-Home programs to assist parents in helping their children acquire mobility skills
such as walking, stair climbing, and wheeled mobility.
Equipment we provide:
-Orthotics for the feet, ankles, knees, hips, spine, shoulders, elbows, wrist, and hands.
-Walkers, standers, crutches, and canes.
-Wheelchairs, and adaptive strollers
-Bikes, adapted for the individual child.
-Bath equipment
-Lift equipment
-Other assistive technology
Some of the company lables we carry are: Benik, Cascade orthotics, SPIO, Convaid, Easystand, Easy Walking’s Up ‘n Go, Kids Up Co., Snug Seat, Sunrise medical, Rifton, and many, many others.
Funding
You will want to check with your insurance company to see if there are any restrictions to what providers you may see for orthotics and/or durable medical equipment. We work with many insurance companies and other funding sources to assure that your child receives the most optimum equipment to get your child moving.
At Walking and Wheeling-
We want your child to receive the most effective
adaptive equipment to get them moving on their own.
We will help your child acquire the very best
equipment suited for their unique needs, by providing
an evaluation by a physical therapist who specializes
in adaptive equipment. We also offer training to get
the most functional use of the equipment.

"WE GET KIDS MOVING!"

You can find more information at the Walking and Wheeling Blog site.

Wonderful ideas ~ Inviting You

noreply@blogger.com (Lori Osero) — Sat, 09 Oct 2010 15:35:00 +0000

I was just wow'd this morning to see that my new blog had 200 visits already and it hasn't even been 24 hours since it's been up and running. I'm so excited with the interest in families wanting to be included in our Special Needs Blog search. Thank YOU! My mind was just going last night with all that I could do with this blog to help out the Special Needs world it's a work in progress so bare with me.
I am going to start a "Classified" section were I can post items that families would like to get rid of. I'm not sure how I'm going to get it going as of yet but ideas and opinions are WELCOME. Please contact me if you are in looking to sell or give away items ..... or if you are in NEED of finding items. I can post them on the board for everyone to see. It's a work in progress and if done right I hope that this blog will be a BIG resource.
If you are a business looking to get noticed by a LARGE amount of Special Needs families please contact me and we can talk about me advertising your link on the blog of ALL to see.

My contact email is talkingsn@gmail.com

*************************************************************************************
This Blog was created as a Social Network Site for Families, Caregivers, and Medical Personnel to come together to share ideas, advise, and experiences in this world we call LIFE.

This site is for informational purposes ONLY. Not to be used for medical diagnosis' or treatments... please consult your physician for medical advise given as "WE" will not to be held responsible for actions taken.

I invite you to send me:

1. Your blog address so I can add it to the forever growing Blog list ~ this will be a "quick" link to your blog for people to follow you on an on going basis

* don't forget* 2. Please send me a short synopsis about your story. I would like to know who you are, where you are, how many children with ages. I would also like diagnosis' and medical treatment/surgeries as I will be putting a WELCOME post of each family on the blog so when others come to visit they can search our blog to find specific topics that they are looking for.

3. If you have an inspirational or educational story and/or website that you'd like to share, please forward that as well and I will link it on the blog for other to find and follow

Please send me your information via email .... to talkingsn@yahoo.com with WELCOME info as your subject.

Thanks for your time and interest in helping others that are walking in our shoes.

Welcome The Jones Family

noreply@blogger.com (Lori Osero) — Fri, 08 Oct 2010 22:41:00 +0000

This is Joan they live in Maryland ~ Hannah has a rare chromosome deletion 1q 24-31. she is 15yo but developmentally like a 3month old. She is deaf/blind, has seizures (on 4 sz meds) with a trach, vent, gtube, very small for her age. She has a lot of other issues too :( we have 2 older girls in their late 20's. Becky is married to todd, they have taylor age 2 and expecting a son, Logan in jan 11, jenn is married and expecting her first baby, a son Jonas due this month! chuck and I have been married for 33 years!
To see Hannah's full story click HERE

To follow their full story and journey's visit their blog Joan's Blessings

Welcome The Osero Family

noreply@blogger.com (Lori Osero) — Fri, 08 Oct 2010 21:11:00 +0000

I will be the first to Welcome My Family My name is Lori Osero we live in Wisconsin. I am a wife (since 2001) and a mother of two "special" kids my daughter is 8 and my son is 6 (10-2010)
I have a daughter that was born 8 weeks premature and has a blood disorder called Hereditary Spherocytosis. She had a Aplastic Anemic Crisis in April of '08 which required multiple blood transfusions. In December of 2008 she had a complete splenectomy and gall bladder removal and she know lives as a "typical" child. She runs a risk of going septic for up to 10 years after her surgery and will continue to stay on penicillin every day.

To she her Full story click HERE
My son was to be a "typical" child. Induced 3 weeks early he had a traumatic delivery because of a Umbilical Prolapse and sustained Hypoxic Ischemic Encephalopathy (fighting for his life before he was even born) because he was without oxygen and blood to the brain for a period of time his ever growing list of diagnosis' are :
Severe Spastic Quad CP ~ Seizures ~ Unstable Temps.~ Laryngeal & Tracheal & Left Bronceal malacia~ COPD ~ Kyphoscoliosis ~ Clonus ~ Cortical vision impairment& Optical atrophy ~Hemianopsia~ SIADH ~ Precocious Puberty ~ Hydronefrosis kidneys & Calcium deposits ~ C Diff prone ~ Aspirates ~ Pseudomonas in Throat ~ Lupus Anticoagulant ~ Dysautonomia~ Torticollis
Some of his surgeries have been :
Tracheotomy~ VETPR~ Intrathecal Baclofen Pump ~ Fundoplication/Nissen ~ G-tube ~ Ear tubes ~ Suprogtolloplyasty ~ Right Hip Osteotomy ~ Pyloric Valve opening ~ Boncoscopies ~ Endoscopies ~ Kidney stent & stone removal
To see his Full story click HERE
To follow our story and journey's our blog My New DreaMS

Inviting You

noreply@blogger.com (Lori Osero) — Fri, 08 Oct 2010 16:13:00 +0000

This Blog was created as a Social Network Site for Families, Caregivers, and Medical Personnel to come together to share ideas, advise, and experiences in this world we call LIFE.

This site is for informational purposes ONLY. Not to be used for medical diagnosis' or treatments... please consult your physician for medical advise given as "WE" will not to be held responsible for actions taken.

I invite you to send me:

1. Your blog address so I can add it to the forever growing Blog list ~ this will be a "quick" link to your blog for people to follow you on an on going basis

2. Please send me a short synopsis about your story. I would like to know who you are, where you are, how many children with ages. I would also like diagnosis' and medical treatment/surgeries as I will be putting a WELCOME post of each family on the blog so when others come to visit they can search our blog to find specific topics that they are looking for.

3. If you have an inspirational or educational story and/or website that you'd like to share, please forward that as well and I will link it on the blog for other to find and follow

Please send me your information via email .... to talkingsn@yahoo.com with WELCOME info as your subject.

Thanks for your time and interest in helping others that are walking in our shoes.